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December 2-3 Chicago
44 million family caregivers have a voice and through various organizations, such as Caregiving.com they are able to be empowered to access resources and emotional support. But there are larger systemic issues that we as a society need to address. The healthcare system is complex and though we have seen new vehicles address the transitional care/post acute network there are many gaps.
Who is able to guide families through Care Maps, ways to orchestrate how all of the team can optimize the resoures necessary to support health, emotional, economic and a quality of life.
We access the ” system” through many entry points -advocacy and having a guide is mission critical to navigate the non-system. But, there is not one resource to avoid stumbles and only through sharing and community can we support the many needs of the caregiver and caree.
We need to have conversations on health-driving-home-finances-mental health-protection and lastly-legacy and death. Integrating these compoents is daunting. How to equip one with the tools was covered and needs to be part of the Caregivers toolbox.
In addition to concrete pragmatic approaches to caregiving we need meditation, minefulness and other emotional support to sustain the caregiver. The activism, compassion, information and sense of community are some of the messaging we heard. The next blog will provide a list of websites and resources that our readership can access for their contingentencies.
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